2022 Family & Scientific Conference

Early Bird Registration for the 2022 NR2F1 Foundation Family and Scientific Conference is OPEN!

April 6-8, 2022, in Orlando, Florida

Embassy Suites by Hilton Orlando Lake Buena Vista Resort,
click here to book your room at the group rate.

Click here for more details and to register.

Conference Itinerary

*Subject to change

Wednesday April 6th:

5p-7p Meet & Greet evening reception and Registration

Thursday April 7th: 7:30 – 9am Registration

9a-12p Scientific/educational presentations and speakers, including:

  • Dr. Christian P. Schaaf (University Hospital Heidelberg, Institute of Human Genetics)
  • Dr. Jane Edmond (University of Texas at Austin, Dell Medical School
  • Dr. Veeral Shah (Cincinnati Children’s Hospital Medical Center)
  • Dr. Terry Jo Bichell (COMBINEDBrain)
  • and more TBD

12p-1:30 Family & Attendees Lunch Buffett, hosted by NR2F1 Foundation

1:30-4p Scientific/Educational Breakout Sessions

4:30p-5P Musical Performance

Friday April 8th:

9a-1p Family and Attendees Event Hosted by the NR2F1 Foundation on hotel grounds.
More details to come.


Early Bird Registration Ends Nov. 1st, 2021

BBSOAS patient and children 0-3yrs FREE

$55 per adult 18yrs+

$35 per sibling/Child 4yrs+

Nov. 2nd 2021 – March 1st, 2022 registration costs:

BBSOAS patient and children 0-3yrs FREE

$75/Adult 18yrs+

$50/Child 4yrs+

All registrations include a FREE T-shirt for the BBSOAS patient.

Registration Closes March 1st, 2022

**Want to help out and join the Conference Committee? Have Questions?

Message us on Facebook or info@nr2f1.org


BBSOAS Families – Click here to download the Fundraising Guide To Get Your Family to the Conference! It’s full of ideas, strategies and wording to help you raise money for your expenses.

Do you know someone who may be interested in promoting their business for a cause they can feel really good about? Or maybe they would like to honor an individual living with BBSOAS?

Click here to learn more about sponsorship opportunities

Click here to purchase Scratch-n-Sniff greeting cards that include a wide range of greetings and celebrations.

50% of your purchase goes directly towards the conference!

2018 BBSOAS Family & Scientific Conference Commemorative Video