2024 Family and Scientific Conference

2024 NR2F1 Hybrid Conference Statement of Purpose:

For NR2F1 and Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) researchers and doctors to meet and share research findings to foster the growth of an international scientific community for a collaborative path to further BBSOAS research.

AND

For BBSOAS families to connect with each other to foster empowerment and enhance their knowledge of BBSOAS/NR2F1 science and research in order to further patient-led research.

2024 Family and Scientific Conference

April 3-5, in Orlando Florida

IN-PERSON REGISTRATION IS CLOSED

Register HERE to attend VIRTUALLY
*VIRTUAL REGISTRATION CLOSES APRIL 2nd

Questions?

Contact: brigette.hinger@nr2f1.org

Make sure you are registered for our newsletter to to receive important conference updates HERE.

2024 Family and Scientific Conference
2024 Family and Scientific Conference
2024 Family and Scientific Conference

In-Person Attendee FAQ's

Check-in will be in the atrium Wednesday 3rd from 5-7p. Thursday 4th and Friday 5th check-in will be near the Buena Vista ballroom entrance just of the atrium area.

Unfortunately, no. In order to provide an accurate head count for planning purposes, registration for the conference has closed.

We will consider a refund only under extenuating circumstances. Please contact the conference chair, Brigette Hinger at brigette.hinger@nr2f1.org if you need to request a refund.

Pollen levels have been high this time of year. If you suffer from allergies, we recommend bringing what you need for this.

The hotel does not provide airport shuttles. There are reliable ride shares available like Lyft and Uber. Contact the hotel for options.

There is a shuttle that runs to all four Walt Disney World Theme Parks, Disney Springs, Universal Studios and Sea World. Click HERE for the shuttle schedule. We advise that you contact the hotel directly to confirm the details and schedule.

The daily parking fee at the hotel is $20 per day. Valet parking is $27 per day, per vehicle.

The NR2F1 Foundation is providing a buffet lunch on Thursday 4th as well as light snacks and refreshments Thursday 4th in the morning and Friday 5th both morning and afternoon during Family Day. All other meals are on your own. If you are staying at the hotel, breakfast is included as well as a complimentary evening reception each night with beverages and snacks.

You can find all the information you need in the conference app, Whova.

You can download Whova from the Apple Store or Google Play. Once downloaded, enter the invite code you received via email after registering to attend.

Please contact Brigette Hinger via Whova or text 970-749-4191.

The presentations will take place in the Buena Vista ballroom, just off the atrium area. There will be signs, you won’t miss it!

Per the hotel policy, outside food of any kind is not permitted in the hotel. There will be a refreshment station with plenty of light snacks and beverages. It will be available each morning after the presentations begin and you will be able to bring back your beverage and snacks into the ballroom with you.

There is no dress code but please bear in mind that photos and videos will be taken throughout the two-day conference. The Buena Vista ballroom temperature might be a bit on the cooler side so if you are sensitive, dress in layers.

Yes, children are welcome to join attendees in the ballroom if they can sit through the presentations! We do want to make sure that all attendees can benefit from the speakers and the important content they will be sharing. If things get too disruptive, it is totally fine to leave and come back at any time.

Yes, all presentations and all breakout sessions will be recorded and available after the conference.

We ask speakers to provide us their slides after or during the conference. We will communicate to the community as soon as they are available and where to find them.

Yes! Attendees will have the opportunity to ask questions after each presentation. There is limited time for Q & A after each speaker so please try not to ask questions that are extremely unique to your child only. At the end of the conference, you will have an opportunity to contact speakers if you have questions that are specific only to your child.

We will keep a list of all questions asked by each attendee throughout each presentation. At the end of the conference we will send these questions to the speakers to be answered and we will share them with the individual and if applicable, with the community.

Family Day will follow Friday morning presentations and will take place in the hotel tennis courts, behind the pool area (there will be signs). It will be a fun-filled afternoon on the tennis courts of the hotel, hosted by the NR2F1 Foundation for all BBSOAS families and friends. There will be caricature drawing, face painting, art, music, a sensory break area, refreshments and more. It will wrap up the conference by gathering together to have fun while we celebrate our BBSOAStrong!

You will probably not be alone with this and we have prepared a quiet area for those who are overstimulated. We will have a comfortable tent to hang out in as well as noise-canceling headphones for attendees to use (and keep). We strongly encourage you to stop by even if you can’t stay long!

Please message Brigette Hinger via Whova or text 970-749-4191.

We would LOVE it if it if you shared your photos! The NR2F1 Foundation has pages on all social media platforms! You can tag the @NR2F1Foundation on Instagram, Facebook, Threads, and TikTok. Any posts that you tag @NR2F1Foundation will be reposted onto our stories throughout the conference.

Virtual Attendee FAQ's

We will be using Zoom Webinar to stream the conference live. Via Whova or your email, you will receive a link with a passcode to access the event.

No. You can join as a participant without creating or signing into an account. You will receive a link and passcode to access the event via Whova or your email.

In the same email that you received the link to join the conference, you will receive an additional four Zoom links with passcodes to access the breakout sessions. Each link will be titled with the corresponding topic you wish to attend. There will be two breakout sessions from 2p-3p EST (Dads Group or Cortical Visual Impairment) and two breakout sessions from 3p-4p EST (Communication and Navigating the USA Disability Benefits).

Zoom can translate the captions into your preferred language. This is done in real-time during the meeting, and can be set by each individual participant.

  1. Click the Show Captions button .
    Captions will appear above the controls toolbar.
  2. Next to the Show Captions button, click the up caret/arrow button
  3. Under the Translate to section of the menu, click on the language you want the captions translated to.
  4. If needed, click the More option to see more available languages.
    Once a different language is chosen, the captions will be generated and translated into that language for you.

Yes, virtual attendees will be able to view a live transcript of the presentations.

  1. Under Your Caption Settings, click View Full Transcript.
    The Transcript panel will appear, displaying the meeting’s/webinar’s full transcript.

(Optional) At the bottom of the Transcript panel, click Save Transcript to save a file of the full transcript.

(Optional) Use the search bar to search through the transcript.

The conference will be held in Eastern Standard Time (EST) or UTC-5. World Time Zone Map

If you are registered to attend, all conference info can be found in the conference app Whova. If you are not registered to attend, visit the 2024 conference page to learn more.

You can download Whova from the Apple Store or Google Play. Once downloaded, enter the invite code you received via email after registering to attend.

Please contact Brigette Hinger via Whova or text 970-749-4191.

We ask each speaker to provide us slides to their presentations. We will share the slides during or after the conference, pending the speakers’ preferences.

Virtual speakers will ask questions via chat in Zoom.

How to use chat on PC:

  1. While in a meeting, click Chat in the meeting controls.
  2. In the To: drop-down menu, select Everyone OR tap the name of the participant you want to chat with directly.
  3. Enter your message in the chat window.
  4. Press Enter to send your message.

How to use Chat on mobile:

  1. While in a meeting, tap More and then tap Chat .
  2. In the Send to: drop-down menu, select Everyone OR tap the name of the participant you want to chat with directly.
  3. Enter your message in the chat window.
  4. Tap to send your message.

If you have access to Google Translate, we suggest you use that to translate your question into English and copy/paste into the chat for a smoother process in receiving your answer. Otherwise, yes, we will do our best to translate your question into English if you are more comfortable writing in your native language. We just ask for your patience!

Please contact Ashlee via the Zoom chat, Whatsapp or text 602-821-0070. We ask for your patience in advance! We are BBSOAS parents running this conference and will do our best to address any technical issues as they arise.

Don’t worry, we will keep a list of all questions asked by each attendee throughout each presentation. At the end of the conference we will send these questions to the speakers to be answered and we will share them with the individual and if applicable, with the community.

Please contact Ashlee via the Zoom chat, Whatsapp or text 602-821-0070

2024 Conference In-Person Agenda

2024 In-Person Conference Agenda

2024 Conference Virtual Agenda

2024 Virtual Conference Agenda

How to Raise Funds to Get Your Family to the Conference

Below you will find the Fundraising Guide To Get Your Family to the Conference! It’s full of ideas, strategies and wording to help you raise money for your expenses.

2024 Conference Fundraising to Get Your Family There

Not sure about traveling with a child with special needs? Check out this great podcast ‘To travel or not to travel with Julie Anderson’ from our friends at CTNNB1.

Still not sure whether to attend the conference? Check out the blog from last year on how positive the feedback was from families that joined in person and virtually and head over to our NR2F1 YouTube channel to watch videos from our last conference

Questions?

Contact: brigette.hinger@nr2f1.org

We look forward to seeing you in sunny Florida!

2024 Family and Scientific Conference