2024 Family and Scientific Conference

April 3-5, in Orlando Florida

Embassy Suites by Hilton Orlando Lake Buena Vista Resort

Register HERE to attend IN-PERSON
*All in-person BBSOAS patient attendees receive a free conference t-shirt

Book your hotel room NOW with the NR2F1 Foundation Group Rate

Register HERE to attend VIRTUALLY

Questions? Contact: brigette.hinger@nr2f1.org

  • 4/3 – Registration opens with an Evening Reception, light snacks & beverages
  • 4/4 – Registration in the morning followed by speaker presentations, hosted lunch then breakout sessions
  • 4/5 – Speaker presentations in the morning, lunch on your own then Family Day in the afternoon at the hotel

Confirmed Speakers to date: Dr. Christian Schaaf, Sarah Poliquin, PhD, and Carlie Monnier NR2F1 Foundation President….more speakers and details coming soon!

Make sure you are registered for our newsletter to to receive important conference updates HERE.

How much does it cost to host a conference?

It will cost the foundation around $33k to host, and we need your help!
Do you know a company who may be interested in promoting their business for a cause they can feel good about? Or maybe they would like to honor an individual living with BBSOAS? Simply like to donate?

Click HERE to learn more – it’s really easy!

2024 NR2F1 Hybrid Conference Statement of Purpose:

For NR2F1 and Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) researchers and doctors to meet and share research findings to foster the growth of an international scientific community for a collaborative path to further BBSOAS research.


For BBSOAS families to connect with each other to foster empowerment and enhance their knowledge of BBSOAS/NR2F1 science and research in order to further patient-led research.


Contact: brigette.hinger@nr2f1.org

We look forward to seeing you in sunny Florida!

BBSOAS Families

Click HERE to download the Fundraising Guide To Get Your Family to the Conference! It’s full of ideas, strategies and wording to help you raise money for your expenses.