Angélique shares with us all about Charly from Lyon, France. (Translated into English by Carlie Monnier) Comment avez-vous choisi le prénom de Charly? (How did you choose the name Charly?)...
Posted by | November 18, 2021
Mom, Kristy shares with us all about Ebony. How did you choose the name Ebony? We had a list of names that we liked but we couldn't decide so...
Posted by | November 18, 2021
Mom, Taleda shares with us all about her son Adyn. How did you choose the name Adyn? We chose the name Aydn due to a bet between my husband and...
Posted by | November 18, 2021
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Posted by | November 18, 2021
Brooklyn's mom, Patience shares with us all about Brooklyn and the BBSOAS life. How old is Brooklyn and how did you choose her name? Brooklyn is 6yrs old and I...
Posted by | November 1, 2021
The NR2F1 Foundation Global Alliance announces that the first International BBSOAS Awareness Day will be on December 7, 2021. BoschBoonstraSchaaf optic atrophy syndrome, also known as BBSOAS, is a very...
