Darragh Andrews is a 24-year-old para-athlete who lives in Belfast, Ireland, in the United Kingdom. Para-athletics is the sport of athletics practiced by people with a disability as a parasport....
Edith In March of 2020, 12 months-old Edith received the diagnosis of having BBSOAS, also known as Bosch-Boonstra-Schaaf Optic Atrophy Syndrome. It is one of the rarest neurological disorders in...
This was sent to us by Jennifer, mother of 17-month-old Edith, who was recently diagnosed with BBSOAS. Jennifer and her husband Tim also have an older daughter Alice, who is...
