2023 Oh What a Year
Posted by Carlie Monnier | February 12, 2024
2023 – The Year in Review for NR2F1 Foundation

With 2024 having come to an end, we want to take a moment to look back on all that we achieved. The NR2F1 Foundation has accomplished a great deal, especially...

Posted by Carlie Monnier | January 2, 2024
Sponsors Needed for the Upcoming 2024 NR2F1 Family and Scientific Conference

It’s that time again! It’s been almost 2 years since the last Family and Scientific Conference in Florida. That conference had 180 attendants, from 10 different countries and 21 US...

Research-meeting, in person & virtual participants
Posted by Carlie Monnier | October 30, 2023
Research Strategy Goals

First research strategy meeting In January this year we held our first ever Strategic Planning session and developed our 5-year strategy (check it out here on our website). On October...

medical research
Posted by Carlie Monnier | September 20, 2023
Developing a Research Strategy and Roadmap for NR2F1

We have some exciting news! The NR2F1 Foundation will be hosting a research development meeting next month at the University of Denver in Colorado. Scheduled to run all day Saturday,...

nr2f1 team members
Posted by Carlie Monnier | July 11, 2023
10th Annual Million Dollar Bike Ride Was a Success!

June 10th, 2023, was a beautiful sunny day in Philadelphia, PA, as hundreds of cyclists rode to raise money for rare disease research. Riders had a choice of what distance...

Edith Coughlin
Posted by Carlie Monnier | June 13, 2023
Baking a Big Impact

Written by Sarah Kirkman, Edith Coughlin’s ‘Aunty Sais’ From August 2022 - March 2023, just by baking, I managed to raise $2,582 or £2053! Can you believe it? I couldn’t!...

BBSOAS Center of Excellence
Posted by Carlie Monnier | May 9, 2023
Celebrating the Launch of the BBSOAS Center of Excellence

Launch Day - April 21, 2023 We are witnessing history in the making! In collaboration with a multi-disciplinary CVI team led by Dr. Veeral Shah, the NR2F1 Foundation helped make...

Million Dollar Bike Ride
Posted by Carlie Monnier | April 11, 2023
2023 Million Dollar Bike Ride Fundraising for NR2F1 Foundation

On Saturday, June 10, 2023, the 10th Annual Million Dollar Bike Ride (MDBR) will take place in Philadelphia, Pennsylvania. Hosted by the Penn Medicine Orphan Disease Center to raise money...

BBSOAS Center of Excellence
Posted by Carlie Monnier | March 16, 2023
Launch of the First BBSOAS Center of Excellence

The NR2F1 Foundation is making history with the launch of the first BBSOAS Center of Excellence on April 21, 2023. The BBSOAS Center of Excellence, led by Dr. Veeral Shah and...

nr2f1 planning meeting
Posted by Carlie Monnier | February 13, 2023
NR2F1 Foundation Strategic Planning Meeting

No non-profit organization has ever said “we have too much time and too much money”! The need for a strategic plan “Let's be honest, as a small nonprofit, we are more...

Posted by Carlie Monnier | January 6, 2023
NR2F1 Foundation Looks Back at 2022

The NR2F1 Foundation had a tremendous year of achievements in 2022, so as the year has come to a close, we look back and reflect on all that has happened during...

BBSOAS fundraising
Posted by Carlie Monnier | December 7, 2022
NR2F1 Research Fundraising Campaign

One of the primary objectives of the NR2F1 Foundation has been the expansion of our global research network for BBSOAS research. We will provide initial funds for a project called...

17 Mile Point
Posted by Carlie Monnier | November 2, 2022
NR2F1 Foundation Chicago Marathon Fundraising Results

On October 9, 2022, the 2022 Bank of America Chicago Marathon took place, with Tim Coughlin and his best friend Chris Schastok, running to raise funds for the NR2F1 Foundation....

Rare Diseases
Posted by Carlie Monnier | October 11, 2022
2022 Report on Rare Disease Genetic Testing

NORD (National Organization for Rare Disorders), is a 501(c)(3) organization dedicated to individuals with rare diseases and the organizations that serve them. With over 300 patient organization members, NORD is...

Darragh and Michael
Posted by Carlie Monnier | October 5, 2022
Irish Para-Athlete Diagnosed with BBSOAS

Darragh Andrews is a 24-year-old para-athlete who lives in Belfast, Northern Ireland in the United Kingdom. Para-athletics is the sport of athletics practiced by people with a disability as a...