One of the greatest privileges of leading the NR2F1 Foundation is the opportunity to connect with newly diagnosed families. Every time we welcome a new member, I offer a personal...
Posted by | October 29, 2024
Biomarkers are the key to discovering effective and meaningful treatment The NR2F1 Foundation issued a grant to Dr Magdalena Laugsch at Heidelberg University to fund bioinformatics analysis and workflow...
Posted by | October 28, 2024
At the NORD Conference, Jen met with Terry Jo, Executive Director of COMBINEDBrain Thanks to a generous grant from NORD (National Organization for Rare Disease), Jen Coughlin, NR2F1 Foundation President...
Posted by | July 29, 2024
The NR2F1 Foundation issued a grant to Dr. Magdalena Laugsch to support her attending the The European Society of Human Genetics 2024 conference. Dr. Laugsch is the team leader for a lab at the...
Posted by | May 16, 2024
Jennifer Coughlin has been appointed the new President of the Board of Directors of the NR2F1 Foundation. Carlie Monnier, who has held the position since the beginning, is taking over...
Posted by | May 10, 2024
Two years ago, the very first NR2F1 Family and Scientific Conference was held in Orlando, Florida. Last month, the second Conference took place in Orlando on April 3 – 5....
Posted by | April 15, 2024
Dr. Magdalena Laugsch, genetic researcher Dr. Magdalena Laugsch, of the Heidelberg Institute for Human Genetics, is a researcher in the field of genetics. She obtained her Ph.D. degree at the Institute...
Posted by | March 20, 2024
The 2024 Family & Scientific Conference is just around the corner, starting in two weeks in Orlando, Florida! Registrations for virtual attendance close on April 3rd. The conference will start...
Posted by | February 12, 2024
With 2024 having come to an end, we want to take a moment to look back on all that we achieved. The NR2F1 Foundation has accomplished a great deal, especially...
Posted by | January 2, 2024
It’s that time again! It’s been almost 2 years since the last Family and Scientific Conference in Florida. That conference had 180 attendants, from 10 different countries and 21 US...
Posted by | October 30, 2023
First research strategy meeting In January this year we held our first ever Strategic Planning session and developed our 5-year strategy (check it out here on our website). On October...
Posted by | September 20, 2023
We have some exciting news! The NR2F1 Foundation will be hosting a research development meeting next month at the University of Denver in Colorado. Scheduled to run all day Saturday,...
Posted by | July 11, 2023
June 10th, 2023, was a beautiful sunny day in Philadelphia, PA, as hundreds of cyclists rode to raise money for rare disease research. Riders had a choice of what distance...
Posted by | June 13, 2023
Written by Sarah Kirkman, Edith Coughlin’s ‘Aunty Sais’ From August 2022 - March 2023, just by baking, I managed to raise $2,582 or £2053! Can you believe it? I couldn’t!...
Posted by | May 9, 2023
Launch Day - April 21, 2023 We are witnessing history in the making! In collaboration with a multi-disciplinary CVI team led by Dr. Veeral Shah, the NR2F1 Foundation helped make...
