Click the image to watch the video. Meet Zeb from the Netherlands, a young man who lives with a very rare NR2F1 disease caused by a NR2F1 gene variant, Bosch-Boonstra-Schaaf...
Posted by | November 18, 2021
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Posted by | November 18, 2021
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Posted by | November 18, 2021
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Posted by | November 18, 2021
Mom, Cecilia shares with us all about Simon. Cuantos años tiene Simón, y cómo escogieron su nombre? How old is Simón and how did you choose his name? Simón tiene 4 años...
Posted by | November 18, 2021
Mom Ashlee shares with us all about Emma. How did you choose the name Emma? Her first name was chosen before we even started the process to have her. Emma...
Posted by | November 18, 2021
Angélique shares with us all about Charly from Lyon, France. (Translated into English by Carlie Monnier) Comment avez-vous choisi le prénom de Charly? (How did you choose the name Charly?)...
Posted by | November 18, 2021
Mom, Kristy shares with us all about Ebony. How did you choose the name Ebony? We had a list of names that we liked but we couldn't decide so...
Posted by | November 18, 2021
Mom, Taleda shares with us all about her son Adyn. How did you choose the name Adyn? We chose the name Aydn due to a bet between my husband and...
Posted by | November 18, 2021
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