Fundraising

2023 Oh What a Year
Posted by | February 12, 2024
2023 – The Year in Review for NR2F1 Foundation

With 2024 having come to an end, we want to take a moment to look back on all that we achieved. The NR2F1 Foundation has accomplished a great deal, especially...

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2022 Family and Scientific Conference
Posted by | January 2, 2024
Sponsors Needed for the Upcoming 2024 NR2F1 Family and Scientific Conference

It’s that time again! It’s been almost 2 years since the last Family and Scientific Conference in Florida. That conference had 180 attendants, from 10 different countries and 21 US...

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Research-meeting, in person & virtual participants
Posted by | October 30, 2023
Research Strategy Goals

First research strategy meeting In January this year we held our first ever Strategic Planning session and developed our 5-year strategy (check it out here on our website). On October...

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nr2f1 team members
Posted by | July 11, 2023
10th Annual Million Dollar Bike Ride Was a Success!

June 10th, 2023, was a beautiful sunny day in Philadelphia, PA, as hundreds of cyclists rode to raise money for rare disease research. Riders had a choice of what distance...

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Edith Coughlin
Posted by | June 13, 2023
Baking a Big Impact

Written by Sarah Kirkman, Edith Coughlin’s ‘Aunty Sais’ From August 2022 - March 2023, just by baking, I managed to raise $2,582 or £2053! Can you believe it? I couldn’t!...

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Million Dollar Bike Ride
Posted by | April 11, 2023
2023 Million Dollar Bike Ride Fundraising for NR2F1 Foundation

On Saturday, June 10, 2023, the 10th Annual Million Dollar Bike Ride (MDBR) will take place in Philadelphia, Pennsylvania. Hosted by the Penn Medicine Orphan Disease Center to raise money...

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what a year
Posted by | January 6, 2023
NR2F1 Foundation Looks Back at 2022

The NR2F1 Foundation had a tremendous year of achievements in 2022, so as the year has come to a close, we look back and reflect on all that has happened during...

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BBSOAS fundraising
Posted by | December 7, 2022
NR2F1 Research Fundraising Campaign

One of the primary objectives of the NR2F1 Foundation has been the expansion of our global research network for BBSOAS research. We will provide initial funds for a project called...

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17 Mile Point
Posted by | November 2, 2022
NR2F1 Foundation Chicago Marathon Fundraising Results

On October 9, 2022, the 2022 Bank of America Chicago Marathon took place, with Tim Coughlin and his best friend Chris Schastok, running to raise funds for the NR2F1 Foundation....

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Bank of America Chicago Marathon
Posted by | August 23, 2022
Chicago Marathon Fundraiser for NR2F1 Foundation Research

Edith In March of 2020, 12 months-old Edith received the diagnosis of having BBSOAS, also known as Bosch-Boonstra-Schaaf Optic Atrophy Syndrome. It is one of the rarest neurological disorders in...

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