NR2F1 Gene

up close of Adyn a young boy with dark green eyes is gazing to his right

Posted by Carlie Monnier | November 18, 2021January 5, 2023

Mom, Taleda shares with us all about her son Adyn. How did you choose the name Adyn? We chose the name Aydn due to a bet between my husband and...

6 Likes Leave a comment

Henry a young boy is gazing up while sitting in a blue chair

Posted by Carlie Monnier | November 18, 2021January 5, 2023

A Day in the Life of Henry (Click to read each slide)

5 Likes Leave a comment

Posted by Carlie Monnier | November 18, 2021January 5, 2023

Sassy – Intuitive – DETERMINED…Meet 6 yr old Brooklyn from Florida!

Brooklyn's mom, Patience shares with us all about Brooklyn and the BBSOAS life. How old is Brooklyn and how did you choose her name? Brooklyn is 6yrs old and I...

5 Likes Leave a comment

Posted by Carlie Monnier | November 1, 2021January 5, 2023

First International BBSOAS Awareness Day

The NR2F1 Foundation Global Alliance announces that the first International BBSOAS Awareness Day will be on December 7, 2021. BoschBoonstraSchaaf optic atrophy syndrome, also known as BBSOAS, is a very...

10 Likes Leave a comment

1 2