One of the greatest privileges of leading the NR2F1 Foundation is the opportunity to connect with newly diagnosed families. Every time we welcome a new member, I offer a personal...
Posted by | July 11, 2023
June 10th, 2023, was a beautiful sunny day in Philadelphia, PA, as hundreds of cyclists rode to raise money for rare disease research. Riders had a choice of what distance...
Posted by | April 11, 2023
On Saturday, June 10, 2023, the 10th Annual Million Dollar Bike Ride (MDBR) will take place in Philadelphia, Pennsylvania. Hosted by the Penn Medicine Orphan Disease Center to raise money...
Posted by | January 6, 2023
The NR2F1 Foundation had a tremendous year of achievements in 2022, so as the year has come to a close, we look back and reflect on all that has happened during...
Posted by | October 11, 2022
NORD (National Organization for Rare Disorders), is a 501(c)(3) organization dedicated to individuals with rare diseases and the organizations that serve them. With over 300 patient organization members, NORD is...