Effective Date: May 28, 2025
The NR2F1 Foundation is committed to protecting your privacy. This Privacy Policy outlines how we collect, use, and protect the information you provide through our website, nr2f1.org. By using our website, you agree to the terms outlined in this policy.
1. Information we collect
We collect personal information from users who:
Register on nr2f1.org (as a caregiver or supporter to receive our NR2F1 Foundation emails or newsletters, and help us keep track of diagnosed cases)
Make donations
This information may include your name, email address, and other contact details (“Identifiers”). Providing this information is voluntary, and you may opt out of communications at any time.
2. How we use your information
We use your information to:
Process donations and send receipts
Respond to inquiries or requests
Send email updates and newsletters
Improve our website and user experience
Analyze website traffic trends and statistics (aggregated and non-personal)
You can unsubscribe from communications at any time by clicking the “unsubscribe” link in our emails or by contacting us directly.
3. IP addresses
We may collect information about the device you use to access our website including (but not limited to) IP address, browser type, and screen size. We use IP addresses for internal purposes such as:
Diagnosing server issues
Administering the website
Collecting anonymous traffic data for analytics
4. Cookies
Our website uses cookies to enhance your browsing experience. Cookies let us:
Remember your preferences
Analyze site usage to improve functionality
Personalize content based on previous interactions
You can disable cookies through your browser settings. Note that some features of the website may not function properly without cookies.
5. Email privacy
The NR2F1 Foundation does NOT sell, rent, or share email addresses with any third parties outside our organization, without the prior consent of the user or except as described in Section 7 below.
6. External links
Our website may contain links to external websites. We are not responsible for the privacy practices or content of those sites. We encourage you to review their privacy policies before providing any personal information.
7. Data sharing and security
We may share non-personally identifiable aggregate data (e.g., total visitors, most-viewed pages) with partners or donors to improve our services.
Additionally, we may disclose the following categories of personal data with the following categories of third parties:
Category of Personal Data | Category of Third Party |
|---|---|
Identifiers IP addresses and cookies | Service providers: We use service providers such as website hosting and management companies, data storage and data analysis companies, and marketing technology companies. Such service providers can only use personal data for the specific business purpose of providing such services to us and for no other purpose. |
Identifiers IP addresses and cookies | Parties to a corporate transaction or proceeding: In the event of a corporate sale, merger, reorganization, bankruptcy, dissolution or similar event, personal data may be part of the transferred assets. |
Identifiers | Public authorities and legal proceedings: We may disclose personal data about you to government or law enforcement officials or private parties as required by law, and disclose and use such information as we believe necessary or appropriate to (a) comply with applicable laws and lawful requests and legal process, such as to respond to subpoenas or requests from government authorities; (b) enforce the terms and conditions that govern the Site; (d) protect our rights, privacy, safety or property, and/or that of you or others; and (e) protect, investigate and deter against fraudulent, harmful, unauthorized, unethical or illegal activity. |
We take reasonable precautions to protect your personal data from unauthorized access or disclosure.
8. For residents of the European Economic Area and the United Kingdom
The legal bases for our processing of personal data about you are as follows:
Contract: When you donate funds to us, we collect personal data about you that is necessary for completing that transaction.
Consent: We obtain your consent to collect personal data about you for distinct purposes such as receiving marketing communications from us and an internal patient count. You have the right to withdraw your consent at any time.
Legitimate Interest: We have a legitimate interest to collect personal data about you for certain purposes such as data analytics and the protection and administration of the Site so that we can (i) understand our users’ preferences; (ii) to protect the Site from information security threats and our organization in connection with legal claims and proceedings; (iii) to communicate administrative changes in connection with the use of the Site; and (iv) to comply with laws that apply to us and the Site.
We are based in the United States of America. If you are located in the European Economic Area, Switzerland, or the United Kingdom, this means that we may transfer personal data outside of your country. Such transfers are made using adequate safeguards, such as standard contractual clauses.
9. Your choices and rights
You have the right to:
Access the personal data we hold about you
Correct or update your information
Request deletion of your data
Opt out of future communications
To exercise these rights, contact us at ashlee.manjon@nr2f1.org.
Contact us
For any questions about this policy or your personal information, contact:
NR2F1 Foundation
Website: https://nr2f1.org