Resources
Know of some great resources?
Please email us and we will put it on the site!
Email UsTransition to Adulthood
- Transition to Adulthood Checklist from Rare Epilepsy Network
- Education Transition for Children with Neurological Conditions is a free, self-paced online class about transitioning to adulthood from the Pediatric Epilepsy Surgery Alliance
- Aging and Disabilities Resources
- Got Transition is a resource program from The National Alliance to Advance Adolescent Health
- Simons Guardianship Resources
Special Needs Trusts & ABLE Act
Families
- State-by-State Insurance Guide (USA) from Angelman Syndrome Foundation
- Child Neurology Foundation – Respite Care Notebook
- DEE-P – developmental epileptic encephalopathy resources for families
- Epilepsy Foundation – Telehealth Checklist:
- English telemedicine: https://www.epilepsy.com/atom/36086
- Spanish telemedicine: https://www.epilepsy.com/atom/36091
- A Mother’s Rest Foundation (AMR) – respite retreats including discounts for families with “extra needs”
- Handicap Accessible Vehicles
- Miracle Flights
- Variety – The Children’s Charity – medical equipment and mobility